Research in Canada is changing with the inclusion of patient partners (patients, their caregivers or family members) in the research process.
Patient partners are members of the three CNTN Committees:
- Scientific Operations
- Communications and Engagement
- Capacity Building.
Each committee has a co-lead that is a patient partner.
This committee conducts peer review of proposals submitted by CNTN members. One patient partner and two researchers review each submitted proposal and provide written feedback. All patient partners participate in the review sessions and vote on whether to issue a letter of endorsement to the researcher. Patient partners have an important role in this committee as they offer the patient perspective on the feasibility and priority of these new studies.
Communications and Engagement
This committee seeks to promote the CNTN to the nephrology research community and attract new physicians and patient partners to the network.
This committee seeks to grow the number of researchers and support staff trained to conduct research in Canada.
Finally, the Executive Committee, made up of the co-leads from each committee and several other CNTN members provides governance to the network.